Document Type

Working Paper

Mind the Gap: A White Paper on Maine's Missing COVID-19 Surveillance Data, How They Perpetuate Health Disparities of Maine's Citizens with Disabilities, and What Can Be Done to Increase Maine's Public Health Data & Service Equity

Authors

Michelle Fong, University of Maine

Publisher

University of Maine Center for Community Inclusion and Disability Studies

Publication Date

4-18-2023

Abstract/ Summary

A white paper by Michelle Fong, a 2023 NH-ME Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainee and MPH student at the University of New England. Equitable health data represents all populations and can be linked to their common characteristics. Maine’s COVID-19 data can be disaggregated by gender, race, ethnicity, and age, but not by disability status or type. It is an example of inequity in data collection, or a data gap, that prevents analysis of pandemic health outcomes for Mainers with disabilities.

Repository Citation

Fong, M. Mind the gap: A white paper on Maine's missing COVID-19 surveillance data, how they perpetuate health disparities of Maine's citizens with disabilities, and what can be done to increase Maine's public health data & service equity. 2023; University of Maine Center for Community Inclusion and Disability Studies.

Version

pre-print (i.e. pre-refereeing)

Creative Commons License

This work is licensed under a Creative Commons Attribution-No Derivative Works 4.0 International License.