Quality of Life Among Youth with IDD in Parent-Developed Residential Program

Authors

Emma Wynne Hill, University of Maine

Files

Faculty Mentor

Alan Kurtz, Ph.D.

Program

New Hampshire-Maine Leadership Education in Neurodevelopmental and Related Disabilities Trainee Program (NH-ME LEND)

Description

My poster focuses on a research project I am conducting with a team from the Center for Community Inclusion and Disability Studies. The study is tracking changes in quality of life for six young adults with intellectual and developmental disabilities (IDD) as they transition into an innovative housing program developed by their parents. This new housing offers individuals their own apartments, while also providing access to communal spaces and support staff as needed. Individuals with IDD routinely experience a lower quality of life than those without IDD. Further, the nature of residential settings has been shown to affect resident’s quality of life. For this study, quality of life is being measured in three ways: (1) pre-post administration of the INICO-FEAPS Scale, and pre-post administration of a quantitative survey created for this purpose to parents and residents; (2) structured qualitative interviews of parents and residents; and (3) measures of changes in goals identified in person-centered planning meetings, along with an analysis of the methods and processes used to create those goals. To date, one round of INICO-FEAPS surveys and qualitative interviews has been conducted, and that data is currently being aggregated and thematically coded. Since the project has not yet been completed, my poster will center on its impetus, goals, and process. In addition, it will incorporate results from the first round of qualitative interviews, coupled with preliminary results of the INICO-FEAPS Scale.

Publication Date

4-2018

Document Type

Poster

Publisher

University of Maine Center for Community Inclusion and Disability Studies

City

Orono

Conference Name

2018 University of Maine Student Symposium, Research and Creative Activity

Conference Location

Bangor, Maine

Keywords

youth with intellecutual developmental disabilities, residential programs for people with disabilities

Disciplines

Social Work

Rights and Access Note

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Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-No Derivative Works 4.0 International License.

Recommended Citation

Hill, E. (2018, April). Quality of life among youth with IDD in parent-developed residential program. Poster presented at the 2018 University of Maine Student Symposium: Research and Creative Activity. Bangor, ME.