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The Center for Community Inclusion and Disability Studies (CCIDS), Maine’s University Center for Excellence in Developmental Disability (UCEDD), carries out a variety of education and research activities designed to improve the social and health equity of people with disabilities (PWD). CCIDS sought to examine the health equity of Maine’s population with intellectual and neurodevelopmental disabilities (IDD/NDD) regarding Covid-19. However, we encountered a data gap. Therefore, we examined the drivers of data gaps for people with disabilities to make recommendations for improving their health equity by ensuring their representation in public health data, the evidence base for policymaking.
data equity, health equity, public policy, intellectual and developmental disabilities, public health, health disparities
Life Sciences | Medicine and Health Sciences | Social and Behavioral Sciences
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Fong, M. (2023, May). Mind the gap! Advancing data equity to improve population health equity for people with disabilities. (PDF). Poster presented at the NH-ME LEND Capstone Poster Session, University of New Hampshire, Durham, NH.